tag:blogger.com,1999:blog-4181250987386027700.post8635913251840651929..comments2023-05-10T08:58:30.730-07:00Comments on One Day at a Time...: Rough DayJust Enough for the Journeyhttp://www.blogger.com/profile/02203380834602038181noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4181250987386027700.post-26455116144209419352012-01-30T10:36:56.583-08:002012-01-30T10:36:56.583-08:00Sometimes words seem so inadequate and I wish I co...Sometimes words seem so inadequate and I wish I could rather hug you right now, but that not being possible, know that we are praying, trusting in the Spirit's intercession with groans that words cannot express. Much love to all 4 of you...minnemiehttps://www.blogger.com/profile/03672809552936996783noreply@blogger.comtag:blogger.com,1999:blog-4181250987386027700.post-59037125933211613862012-01-29T16:46:07.187-08:002012-01-29T16:46:07.187-08:00If you ever need anything when you get pleae feel ...If you ever need anything when you get pleae feel free to call. I live in fountain and have been following Judes progresss for sometime. You and your family are always on our prayers. I have also asked several people whom I work with to kift your family up in prayer. I am ususally home by 3:30 or 4:00 on most days. I have Monday off but will at St. Francis with my mother in law who is having a procedure done to her legs. We are hopeful that the doctor can do both legs. It will be sort of a long day as my son will have be picked up scholl at 4 then have to for another ot eval then come and get supper ready. Thank goodness my husband has agreeded to help out in that area. Then get him his bath and get him in bed and then get ready for bed myself to up for him to get ready for school and then mommy get ready for work. Then after that another therpay session from 5 to 6 to help him gain social skills that he needs to have. Well hope you all have a great night and keep in touch. In god's everloving Name The Connelly Family Fran, Robyn & JohnRobyn Connellyhttps://www.blogger.com/profile/10989391436059142941noreply@blogger.comtag:blogger.com,1999:blog-4181250987386027700.post-85003999500413839072012-01-29T10:23:30.115-08:002012-01-29T10:23:30.115-08:00You guys continute to encourage me with your faith...You guys continute to encourage me with your faith and thankfulness to God. I have been able to share this blog with friend who do not know Christ and they are seeing dependence on our God in such a beautiful way. God is using this extremely difficult situation to demonstrate His love to so many people. I love you guys and will continue to pray for you. May God continue to give you peace and faith in Him.Davidhttps://www.blogger.com/profile/14501447439429980341noreply@blogger.comtag:blogger.com,1999:blog-4181250987386027700.post-6093476470415811762012-01-28T23:48:59.247-08:002012-01-28T23:48:59.247-08:00I saw a prayer request on Kelly Stamps blog. Aski...I saw a prayer request on Kelly Stamps blog. Asking for prayers for Jude and for all of your family. So our little family in Australia is doing just that and praying for all of you. I am the Mum to an 8-1/2 year old who was born weighing 4lb 6ozs and has given the medical profession a lot of 'entertainment' over the years. I know the pain of sitting beside your child in a humidicrib praying that you will do anything if God will allow them to live. Stay strong and take care of yourselves as best you can.Mum2twopreciousgiftshttps://www.blogger.com/profile/15007154408088837824noreply@blogger.comtag:blogger.com,1999:blog-4181250987386027700.post-31937213602486243692012-01-28T22:14:31.052-08:002012-01-28T22:14:31.052-08:00Yes, your sweet boy is on my heart. I think of you...Yes, your sweet boy is on my heart. I think of you often and pray for your Jude. Reading your story reminds me of our journey with Samuel, who is almost a year old. It was not so long ago that we walked a similar path as you are walking. I remember trying to hold Samuel while he was coming off sedation, working to breathe, setting off the alarms on the CPAP because his mask didn't fit. I wanted so badly to be able to comfort him and, after several hours of failing, had to walk away to have a good cry. <br /><br />There is light in your journey now but I know that things are still hard. I am sending you all some extra strength, the kind that another CDH mama knows all about. God bless.<br /><br />Corinne in Calgary, AB<br />Mama to Samuel, lcdh survivor, Feb1/11<br />www.samuelslight.blogspot.comCorinnehttps://www.blogger.com/profile/01570660912330119673noreply@blogger.comtag:blogger.com,1999:blog-4181250987386027700.post-35195593063644867652012-01-28T20:02:22.864-08:002012-01-28T20:02:22.864-08:00Brian and Rose- So sorry to hear about your rough ...Brian and Rose- So sorry to hear about your rough day. I know it is so hard to watch your baby endure so much and to be unable to soothe them makes it so much worse. Praying that God will comfort you and Jude tonight. Also praying that the Lasix's give him the boost he needs to be able to return down to 21% (yay for good blood gases!). I know Pierce and Jude have very different medical histories, but I wanted to let you know that because of Pierce's lung damage (also caused partially by the ventilator), he had very similar experiences. Pierce needed Lasix's on and off for quite some time. However over time, his need for Lasix slowly spaced out becoming fewer and farther between. I say this to hopefully encourage you in that it won't always be like this! Hang in there. His lungs will grow stronger every day. I know the NICU journey is exhausting and seems endless, but there is light at the end of the tunnel and it won't be long before this is just a distant memory. (We are only 5 months post-discharge and I've already forgotten so much about our NICU days.) Praying for God to heal Jude's lungs and trusting that He will. We are praying for you guys!Nik, Lindsay and Pierce Frankshttps://www.blogger.com/profile/16914427099218563113noreply@blogger.com