Not much to say tonight except that Jude is still struggling with throwing up / feeding. He is throwing up as much as 8 times a day and losing weight. He is miserable and it is breaking our hearts. We know that Jude has severe acid reflux but this is too much.
Since I last wrote the doctors have tried adjusting some of the dosage on a medication that helps "wake up" his GI tract, they have added an additional acid reflex medication and then today they switched him from breast milk to a very simple and broken down formula to see if that would help his tummy troubles. If doesn't appear that the medication changes have worked thus far and we are still waiting to see how the formula impacts his throwing up and acid reflex.
Poor Jude. Most CDH babies struggle with acid reflux but Jude has an especially tough set of circumstances because he also has had a lot of trauma to his insides and who knows what kind of impact it has had on Jude's feeding and keeping food down abilities. I am truly not even sure what to ask you to pray for. Please pray as you feel lead for Jude's food tolerance and for healing. It is truly awful to see him vomiting so much. He is so little and so helpless...he just wants to feel better and do normal baby things!
As mentioned before, we are weary. It's harder to keep our spirits up when Jude feels so bad. Oh how we long for the day when Jude can enjoy life pain free! We feel SO stretched, but God is with us each step of the way.
But I wanted to ask you all to pray especially for baby Bee. Many of you have been following her CDH journey here: http://babybeehelms.blogspot.com/
Please pray Bee and her family tomorrow. Bee will be delivered at MUSC tomorrow morning/afternoon. Please join us in praying for a strong start, strong lungs and for the Lord to give Bee and her family just what they need each moment of the day. You have all been so faithful to pray for us through the many months and I want to ask you to pray diligently and without ceasing for Bee.
I hope to update you on Jude's progress with the recent changes soon! Please pray for a healthy, happy stomach!